Coming Soon!
Coming Soon!
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The MED12 Foundation is a rare disease patient advocacy group focused upon connecting individuals and families with the scientific community to advance the understanding of MED12-related disease
Announcements
2027 In Person Conference Interest Survey
2027 In Person Conference Interest Survey
TBD Early 2027
Interest in joining an In Person Family & Science Event? Please take our survey as we are in the very early stages of discussion.
2025 MED12 Family Meeting Recap
2025 MED12 Family Meeting Recap
Held Saturday November 8, 2025
This event was virtually hosted by CHOP and featured researchers, & connection opportunities with other patients and families affected by MED12-related disease. View the event page for presentations, event summary and other materials.
Join our Next Volunteer MeetingÂ
Join our Next Volunteer MeetingÂ
Date/Time TBD
Interested in learning more about the role of a Patient Advocacy Group (PAG) and how to volunteer to support The MED12 Foundation? Submit the volunteer interest form & come join us for our next virtual session!
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