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The MED12 Foundation is a rare disease patient advocacy group focused upon connecting individuals and families with the scientific community to advance the understanding of MED12-related disease
Announcements
2025 MED12 Family Meeting Recap
2025 MED12 Family Meeting Recap
Held Saturday November 8, 2025
This event was virtually hosted by CHOP and featured researchers, & connection opportunities with other patients and families affected by MED12-related disease. View the event page for presentations, event summary and other materials.
Next Volunteer MeetingÂ
Next Volunteer MeetingÂ
Saturday December 20th , 2025 10am ET/7am PT
Interested in learning more about the role of a Patient Advocacy Group (PAG) and how to volunteer to support The MED12 Foundation? Submit the volunteer interest form & come join us for our next virtual session!
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